Saturday 16 January 2016


As 2016 begins in earnest it’s a particularly exciting time for us here at aparito to be celebrating our first official birthday!

Since our launch on the Bethnal Green Ventures tech for good accelerator scheme twelve months ago things have been progressing well. A pivotal milestone in our year was obtaining MHRA (Medicine Healthcare Regulatory Authority) approval to start our studies. In addition we were very honoured to be awarded the UnLtd Fast Growth Millennium Award - crucial support that allowed me to protect dedicated time to the work. 

Central to our work is partnering with patient support groups, and we are extremely proud of our collaboration with both the Niemann-Pick Association and the Gaucher Association. Our collaboration with them has not only secured funding from the pharmaceutical industry to conduct studies in both disease groups but also in establishing the partnership with Great Ormond St Hospital, Royal Manchester Children’s and the Salford Royal Hospital where the studies are due to start soon. Without this patient group support our ambitions would be meaningless.

Next week marks a particularly exciting time when I will fly to India to introduce our devices and apps for remote monitoring of patients with lysosomal storage disorders. With the wonderful support of Dr Ashok Vellodi and the LSDSS in India we are thrilled to be launching there. All being well we will also be intiating such an initiative at the National Institute of Health in America in April of this year. To think that we are operating globally within such a short period of time is mind blowing.

December 2015 was a particularly positive time for us. We were not only named in the 2015 Nominet Trust top 100 digital social innovation but it was also announced that we had been awarded a place with Wayra Health Velocity. A digital start up accelerator scheme investing in digital healthcare innovation to address the challenges outlined in the NHS Five Year Forward View. This will inevitably give us a strong platform in 2016 to expand further.

One of the sad news of 2015 was that my co-founder Ed Freed was no longer able to be a central part of the core team. Due to Ed’s success in his day job he could no longer support our day-to-day work but continues to be very much a champion of our goals, and a much needed personal shoulder of support for me. Without Ed, the idea behind aparito would never have emerged, and for that I will always be especially thankful to him.

Our first birthday is a certainly a time to reflect on the last year, and to thank all those that have supported us to get this far. I can’t name you all but needless to say that we would not have been able to get this far without all the help, support and handholding which we have received this far.

One of the things that strikes me the most in reflecting back is that the most valuable help and inspiration has often come from the most unlikely people and places. This is particularly so in terms of our legal partner Hogan Lovells. Their pro bono support as part of their BaSE scheme has been outstanding, and we could not have imagined the extent in which their legal guidance has supported us.

Help and inspiration that has given me the inner-strength and self-belief to truly believe that what we’re trying to achieve at aparito really is a worthwhile initiative.

Digital health is an incredibly fast-moving and crowded space at the moment with many of the big players making great progress with large scale investment. This often feels overwhelming and daunting. But with the help, support and encouragement of all those around us, I’m sure that 2016 will be another great year for aparito grow and prosper as a social enterprise.  

Dr Elin Haf Davies 



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